What a week

Well this has been a wild week for sure. I thought this would be just another birthday weeek for me...the phone calls and cards from my family and friends, but of course it has turned into so much more. I turned 32 on Wednesday, but that day was welcomed in at the emergency room for Micah. Our cardiologist kept saying it must be respiratory, but after an echo on Thursday, it turned out it was his heart. I am in this strange place right now where I am not totally freaking out, because I knew in my own heart that something was wrong with his. I have carried a bad feeling with me for over two weeks now and I was just waiting to see what it was all about. I feel awful for my little guy, he is just shy of his first birthday and having yet another bout of congestive heart failure. I do not see how this is fair for such a happy little boy who only wants to play and sing with his brother and sister. I must say that I owe Micah's life to his pediatrician who has been the most vocal, strong-willed man lobbying on Micah's behalf with the cardiologist to check him out. This is the second time since Micah's open heart that he has gone into CHF, and both times, our pediatrician was the one who knew it and continued to force further investigation by the cardiologist. I am beyond angry right now that we had to fight for a simple echo that the insurance company pays for with no issues. I am able to look on the bright side here...if he is still on the Lasix at the start of RSV season, he qualifies for Synagis shots again this year, so I am wondering if this is some kind of small blessing to help him fight RSV.

Anyway, tomorrow is Micah's big birthday party! I am so excited for him. There will be lots of kids here to celebrate with him and of course his grandparents too. I am in such amazement with this little guy who is so strong and such a fighter. I know that his determination in life has helped him get to where he is and will continue to pull him through all the hard times (hopefully the hard times in the future will be about love, relationships, and normal stuff--not the heart).